How I adjust to my summer 2023 body




- Jul 27
Why perseverance is important in life with FA
- Jul 20
What it’s like to have an ambulatory disability
- Jun 29
How I’m feeling as I approach the 10th anniversary of my FA diagnosis
- Jun 8
Include intentionality and kindness in all of your interactions
- May 25
I’ve been on Skyclarys for nearly 5 years. Here are my thoughts.
- May 18
A typical day in my life with FA
- May 11
Finding balance between my roles as a mom and a person with FA
- May 4
A legacy that goes beyond a mutated FA gene
- Apr 27
What FA taught me about how to ask for help


- Apr 20
The innocence of children is a wondrous thing
- Apr 13
Whether our disability is visible or not, we all deserve kindness
- Apr 6
What to do when words can’t calm the FA storm
- Mar 30
Adjusting to new mobility aids as my FA symptoms progress


- Mar 23
What I learned during a family ski trip with FA
- Mar 9
Reminding myself that I’m worthy of love, even with FA
- Mar 2
Am I living a disabled life, or am I living life with a disability?
- Feb 23
When FA leaves me feeling trapped by my physical limitations
- Feb 9
A timeline of my FA progression, part 3
- Feb 2
A Timeline of My FA Progression, Part 2