Four Years with a Walker
There are many kinds of anniversaries and today is a complicated one for me. Today marks 4 years that I have been 100% dependent on my...
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- Jan 12
Considering Our Response to Living With Rare Medical Conditions
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Jan 6
January 2023 Clinical Trial Visit
After much deliberation over countless pros and cons lists, I’ve prayerfully decided to continue participating in the clinical trial for...
- Jan 5
Setting My Intentions for a New Year With FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Dec 22, 2022
Humble Pie & My Perspective on Life With FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Dec 8, 2022
‘Don’t Stop Believin': Finding the Magic in Life With FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Dec 1, 2022
Lessons From Apples and Oranges on Avoiding the Comparison Trap
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Nov 17, 2022
Heading Into Thanksgiving With an Attitude of Gratitude
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Nov 13, 2022
2022 rideATAXIA
Team Kendall raised $16,000, bringing the 2022 Dallas rideATAXIA total to over $165,000, which amazingly tipped the scales for the 2022...
- Nov 11, 2022
Parallels Between the 2022 Midterm Elections and FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Nov 3, 2022
To My Community: Your Journey With FA Matters
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Oct 27, 2022
Avoiding a Victim Mentality While Living With FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Oct 20, 2022
‘This Too Shall Pass,’ We Say — but It’s Not Always True
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Oct 19, 2022
"Two Disabled Dudes" Podcast Interview
A few weeks ago, I was interviewed for the fantastic podcast “Two Disabled Dudes.” The “dudes,” Kyle Bryant and Sean Baumstark, both have...
- Oct 13, 2022
Heading Into My 9th rideATAXIA Full of Hope
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Oct 8, 2022
2022 rideATAXIA
I officially began my journey with Friedreich's Ataxia (FA) in 2013. It has been a wild roller coaster full of mobility aids, physical...
- Oct 8, 2022
The Subtle Art of Conversing With People Who Have Disabilities
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Oct 6, 2022
Rethinking Superhuman Strength as Someone With FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Sep 29, 2022
Practicing Emotional Control in Life With FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Sep 9, 2022
35!
This is 35! A very happy birthday indeed. Thank you all for the calls, texts, messages, and thoughtful presents. I am one lucky mid-30s...
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