Advice after 8 Years with FA
I was diagnosed with Friedreich's Ataxia 8 years ago today. 8 years ago today, the random symptoms I was experiencing were validated by...
- Aug 19, 2021
Feeling Like a Burden on Vacation Because of My Disability
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Aug 5, 2021
Slow and Steady Doesn’t Always Win the Race
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Jul 29, 2021
Navigating Hope and Worry With FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Jul 22, 2021
What My Recumbent Trike Means To Me
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Jul 21, 2021
Hank - The Mobility Service Great Dane
Meet Hank Harvey, the Great Dane! We have big plans for this gentle giant. He is going to be trained as my Balance & Mobility Service...
- Jul 15, 2021
A Letter to My Newly Diagnosed Self
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Jul 8, 2021
Keep Shining
Lately, I’ve been really struggling. I’m burnt out from fighting my body every second of every day. I’ve reached the end of myself. I...
- Jul 8, 2021
Deciding to Conserve Energy Rather Than Embracing the Moment Is Challenging
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Jul 1, 2021
This 4th of July, I’m Redefining My Independence From FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Jun 24, 2021
Reminding Myself to Appreciate My Mobility Aid
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Jun 22, 2021
Luke Cooper
One of the aspects I avoid thinking about or sharing about Friedreich’s Ataxia is how it is a life-shortening disease. But, it is. FA is...
- Jun 17, 2021
Love Is the Consistent Remedy for My FA Blues
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Jun 15, 2021
Mobility Envy
Lately, I’ve been wrestling with what I call “mobility envy." With the progression of my symptoms + added fatigue from the Texas heat, my...
- Jun 10, 2021
When a Realist Explains FA to Optimists and Pessimists
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Jun 3, 2021
Sometimes Anniversaries Are Tough to Celebrate With FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- May 27, 2021
My Idea of ‘Normal’ Is Skewed by FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- May 20, 2021
Heading Into an Uncharted Season With FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- May 13, 2021
I’m Handling My FA Progression by Making Intentional Accommodations
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- May 6, 2021
Overcoming Mother’s Day Guilt as a Mom With FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...