Jan 5, 2015Pregnancy and Friedreich's AtaxiaI found out that I had Friedreich’s Ataxia (FA) on August 19, 2013. At first, I thought that the entire future I had planned for my...
Dec 4, 2014Support the Newborn Screening Saves Lives Reauthorization ActHello friends, Would you be able to help us with an advocacy request from FARA President, Ron Bartek? Senator Ted Cruz is one of five...
Nov 4, 2014Words to Live BySo often, it is all too easy to get caught up in the drama of life. To throw pity parties, to complain about how busy you are or how...
Sep 10, 20142014 FA SymposiumAs you probably recall, we just passed the year anniversary of my Friedreich's Ataxia diagnosis (August 19th). To reflect on the past...