What Is the Opposite of My Life With FA?
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
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- Jul 28, 2022
FA Forces Me to Process and Cope With Fear
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Jul 21, 2022
How it started v how it’s going: HANK EDITION
How it started v how it’s going! One year ago today, we drove 12 hours round trip to pick up Hank. This year has been full of learning,...
- Jul 14, 2022
The Against-the-Odds Impact That Being Rare Has on My Life
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Jul 7, 2022
How I ‘Take Heart’ on My FA Journey
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Jun 26, 2022
Clinical Trial Update - Summer 2022 (Part 2)
I started a double-blind placebo-controlled 48-week clinical trial in September 2018. After the 48-weeks, I enrolled in the open-label...
- Jun 24, 2022
Clinical Trial Update - Summer 2022
Day date in Atlanta! Kidding. Heading to Emory to be a lab rat for the clinical trial. But, hey, it’s all about my perspective, right?...
- Jun 23, 2022
The Delicate Art of Fielding Questions About My Walker
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Jun 18, 2022
Wishful Thinking
Every time we get a couple of weeks into a new season of life, like “back to school”, summer break, or baseball season, I find myself...
- Jun 16, 2022
An Open Letter to My Friends
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Jun 9, 2022
Conquering Villains With the Magical Power of Perspective
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- May 26, 2022
Facing an Unknown Future as My FA Symptoms Progress
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- May 19, 2022
FA Gives Me a New Reason to Throw Myself a Pity Party
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- May 16, 2022
Sand Volleyball Wishes
9 years ago today, my friends and I won the sand volleyball championship! What you can't see in this picture is that this season of sand...
- May 12, 2022
My Journey to Accepting My Responsibility With FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- May 5, 2022
How FA Has Affected My Parenting Abilities
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Apr 28, 2022
Approaching Everyday Problems as Opportunities for Growth
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Apr 21, 2022
My Main FA Symptoms, Visible and Not
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Apr 14, 2022
What I Hope My Kids Will Inherit From My Life With FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Apr 7, 2022
I Am Not My Disability
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
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