Following These 3 Rules Enables Me to Live Well With FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Mar 8
What is the hardest part about living with Friedreich's ataxia?
If you were to ask me, "What is the hardest part about living with Friedreich's ataxia?" I would answer that it is accepting the...
- Mar 3
I Choose How to Respond to FA Challenges
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Feb 28
Fearless Mom Conference
The Fearless Mom conference this weekend was ah-maze-ing! @juliesrichard @raisingboysandgirls @drrobi_s @hollyfurtick @kidsfaithkrate...
- Feb 24
Friedreich’s Ataxia Requires Regular Updates
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Feb 17
Accepting Love, Even When FA Makes It Hard
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Feb 10
Hank at School!
Hank went to show & tell at school today to help educate students about service dogs! He did great and I am so proud of him. Do you have...
- Feb 3
Self-awareness Helps Me Navigate the Unexpected
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Jan 28
First 2022 Clinical Trial Visit
Although sitting in an airport, riding on 2 planes in 1 day, all to hang out in a hospital all day, isn’t my ideal Friday, I am thankful...
- Jan 27
Hank is a Certified Service Dog!
My sweet Hank passed his public access training test with a 100% score today! He is now an officially certified service dog! That means...
- Jan 27
My FA Status Update: It’s Complicated
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Jan 20
The Pity of Strangers and the Love of Loved Ones
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Jan 18
Finding Peace in the "AND"
I am the "Blog Boss" for the fantastic ministry, Fearless Mom. We let moms share their unique perspectives in hopes of encouraging other...
- Jan 14
New Mobility Aid Blues
This latest tool in my Friedreich’s Ataxia mobility aid arsenal has me feeling blue. I have had a handful of minor falls getting out of...
- Jan 13
The Balancing Act of FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Jan 10
Walker Buddy
My kiddos each got a new kitten from Santa this year. Brooks' cat, Travis, loves to ride around on my walker so he can be a part of all...
- Jan 6
New Year, New Me, and Same FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Dec 30, 2021
Entering 2022 With a Fresh Perspective on FA
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Dec 16, 2021
I’m Not Giving Up, I’m Just Adapting to My Disease Progression
I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to...
- Dec 16, 2021
“Until there’s a cure, there’s a dog.”
Hank got a new vest patch! “Until there’s a cure, there’s a dog.” So incredibly thankful for my mobility service dog (in training) and...