• Kendall

Peripheral Neuropathy

Today, I learned that a new symptom associated with Friedreich's Ataxia has reared it’s ugly head and is here to stay. Peripheral Neuropathy. I have been experiencing a lot of new, painful, debilitating, and saddening symptoms in my toes lately. It seems so silly to get down about something as small as my toes, but what can I say - I'm only human and I can only take so much.


Main takeaways from my appointment with the podiatrist are: The pain and blisters will subside with proper foot care and footwear. The constant cold sensation and cold-to-the-touch, dead purple-looking second toes, and overall numbness is here to stay. Peripheral neuropathy is here to stay.


So, in addition to my snazzy walker, I will now be sporting circulation aiding diabetic socks and orthopedic shoes 24/7. Bye, being barefoot. Bye, sandals and TOMS.


This is not the news I was hoping for today. I am a crying mess. But even in my brokenness, I know that I am His. I am a fearfully and wonderfully made Child of God. My God is good. He is gracious, loving, patient, and constant. I will get through this new hurdle with Him and the wonderful village He has given me.


What I ask of you are prayers. Prayers that I get through this painful flare-up quickly and find the right combination of socks and shoes. I also ask for grace during this adjustment. Say “hey girl, sweet kicks!” when you see me shuffling by in my old lady gear. And most importantly, pray that we #CureFA



I know that I will still be a #BabeWithAMobilityAid because I am made in the image of God.

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