Every time we get a couple of weeks into a new season of life, like “back to school”, summer break, or baseball season, I find myself settling into a funk as we settle into a routine. This usually happens when I realize that my current stage of FA progression isn’t temporary like the seasons are. Friedreichs ataxia is here to stay.
I get so wrapped up in my frustrated little pity party about what is required to safely accommodate my growing lack of abilities that my disabilities seem too big and bad to enjoy any good.
I know… I’m being that disabled girl complaining about being disabled, again, but MAN, what I wouldn’t give to not be disabled. Even if it was just for the summer.
But I will keep doing what I always do which is just to do my best and let God take care of the rest.