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Patient Panel at the FARA Symposium


As many of you know, I recently went to Tampa for the 7th FARA Symposium at the University of Southern Florida (USF). I was so honored to participate on the patient panel. FARA did a live streaming of the whole symposium, and recorded it. If you didn't get a chance to watch it live, don't worry! Here is the link to the recording: http://www.ustream.tv/channel/curefa The symposium inluded a medical panel of active clinical trial representatives, a “state of the Union” type address from the lovely Jennifer Farmer and Ron Bartek of the Friedreich’s Ataxia Research Alliance. The patient panel starts at 1 hour 57 minutes, my part specifically is around 2 hours and 6 minutes.


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I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to share it here, too. You can either read it by following this link

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