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FA Awareness Day 2015


Every year, the third Saturday in May is Friedreich’s Ataxia Awareness day. To help boost awareness this year, I petitioned Texas Governor Greg Abbott to have Saturday, May 16th officially declared as Friedreich’s Ataxia Awareness Day in the great state of Texas. And guess what…. He did it!

So, join me and the rest of the FA community in raising awareness for FA! The Friedreich’s Ataxia Research Alliance (FARA) is doing a great social media campaign that is fun and easy to be a part of. Here’s how you can participate:

  • Download and print one or more “1+1 placard” here. Choose an FA fact that resonates with you or use the blank one to write your own!

  • Share 1 fact with 1 person, then take a picture holding the “1+1 placard” together

  • Post your photo to social media. Tell us a little about your photo (the fact you shared, who you shared it with, etc.) Use the hashtags #1plus1 and #CureFA

I can’t wait to see your submissions! Keep an eye on our Facebook account for Team Kendall’s photo.

#friedreichsataxia #teamkendall

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When to Share Info About FA?

I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to share it here, too. You can either read it by following this link

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