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FARA Newsletter Featuring Team Kendall


The Friedreich’s Ataxia Research Alliance (FARA), just released the new summer edition of the FARA newsletter- The Advocate!

I recently had the honor and pleasure of speaking with Kyle Bryant, the Founder & Director of Ride Ataxia. Ride Ataxia is a fundraising program of FARA. We discussed Team Kendall’s first appearance in the 2014 Ride Ataxia Dallas for the newsletter! You can see the write up on page 9.

There is also a lot of great information about what is going on in the FA community, such as: information about the Penn Medicine/CHOP Friedreich’s Ataxia Center of Excellence, advancements in gene therapy, updates on clinical trials, new research through the grant program, and encouraging words from FA patients and scientists alike. To read the newsletter, click here.

#teamkendall #friedreichsataxia #clinicaltrials #treatment #symptoms #rideataxia

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