Feb 26, 2015Where do Team Kendall donations go?When you donate to Team Kendall or sponsor any Team Kendall riders in RideATAXIA, 100% of your donations go straight to the Friedreich’s...
Jan 12, 2015What is it really like to have FA?In this video, Kyle Bryant (Friedreich’s Ataxia (FA) patient and RideATAXIA creator) talks FA with Tampa Bay Buccaneers player Ronde...
Sep 10, 20142014 FA SymposiumAs you probably recall, we just passed the year anniversary of my Friedreich's Ataxia diagnosis (August 19th). To reflect on the past...
Aug 14, 2014Chondrial Therapeutics LLC is developing a drug for Friedreich’s AtaxiaDoctors with Chondrial Therapeutics LLC are on the verge of a human trial to test a delivery method of a protein called frataxin, which...
Jul 7, 2014FARA Newsletter Featuring Team KendallThe Friedreich’s Ataxia Research Alliance (FARA), just released the new summer edition of the FARA newsletter- The Advocate! I recently...
Mar 17, 2014FDA Fast-Tracks Friedreich's Ataxia DrugThe Friedreich’s Ataxia (FA) community received even MORE great news today! Edison Pharmaceuticals announced that the U.S. Food and Drug...
Mar 5, 2014FA Drug Continues Momentum in Clinical DevelopmentIn the monthly newsletter from the Friedreich's Ataxia Research Alliance (FARA), the FA community received great news about a promising...
Jan 21, 2014Friedreich's Ataxia Treatment AdvancementThe Friedreich's Ataxia Research Alliance announced today that BioMarin Pharmaceutical, a company with a strong commitment and success in...