Raising Awareness in Texas!
Every year, the Friedreich’s Ataxia Research Alliance (FARA) has Friedreich’s Ataxia Awareness Day on the third Saturday in May. It is not an official or nationally recognized day – but a day that the FA community spreads the word about this disease to help raise awareness. It is usually benchmarked by a social media campaign. To help raise awareness, I reached out to Texas Governor Greg Abbott to have Saturday, May 16th, 2015 officially declared Friedreich’s Ataxia Awareness