Jan 28, 2022First 2022 Clinical Trial VisitAlthough sitting in an airport, riding on 2 planes in 1 day, all to hang out in a hospital all day, isn’t my ideal Friday, I am thankful...
Mar 8, 2021Peripheral NeuropathyToday, I learned that a new symptom associated with Friedreich's Ataxia has reared it’s ugly head and is here to stay. Peripheral...
Jul 31, 2020Swimming Despite the DifficultyMy whole life I have LOVED swimming. It has always been a huge part of my life. Even after my Friedreich's Ataxia diagnosis, I kept...
Jul 1, 2020Choosing to be SILLYMy kids are SUPER into hide and seek right now. They play it with Kyle for about 45 minutes every night after dinner. Hearing their...