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October 7, 2019

When I started Team Kendall in 2014, my main goal was to tell people about Friedreich's Ataxia (FA). TeamKendall.org was very information heavy and really tried to EXPLAIN FA. Well, it's been a couple of years, and I feel like most of the people who know me know what F...

October 3, 2019

My sweet Brooks drew this chalk masterpiece in the garage. When I told him how amazing it was and asked him to explain it to me, he said, "That's me and daddy throwing the baseball, and that's you, sitting and watching!" I asked, "sitting?" and he said, "ya! sitting on...

September 20, 2019

👏🏻👏🏻👏🏻 to all the other parents doing their preschool and school routines. It’s definitely organized chaos! Here’s a little picture of what our chaos looks like! Full walker handles = full hearts 💗 I am so thankful for the wonderful school my kids attend (shout...

September 17, 2019

I love swim lessons with my daughter Collins! It’s the only time I can walk around UNASSISTED and hold my baby girl! No walker, no helping hand from anyone. Just me and my baby💗 it’s the little things 🥰 

Parenting is a challenge, with or without FA. But some...

September 12, 2019

Today, I took Brooks to gymnastics. A fellow mom was passing by me. I was sitting in a chair (like all the other moms) and my walker was parked beside me. She says, “You poor thing. Getting out and being busy with toddlers must be such an ordeal for you. That (points a...

August 22, 2019

I am a freelance columnist for Friedreich's Ataxia News. I was recently published on my column, My Darling Disability, and I wanted to share it here, too. You can either read it by following this link, or just keep scrolling below.

As a Friedreich’s ataxia (FA) patient,...

August 21, 2019

Every night, I read a book and say prayers with my kiddos. Kyle puts Brooks to bed and I snuggle Collins.

Collins was wiggly and kicking her little legs tonight. Instead of telling her to “calm down, it’s night night time,” I gently put a hand on her legs and silen...

August 19, 2019

6 years ago today, I heard the words “Friedreichs Ataxia” for the first time. Since that day, I’ve barely had a waking moment where I’m not thinking about it on some level. It has creeped into every area of my life and changed my world in ways I never thought possible.

...

August 4, 2019

Yay! She’s here! Now, here’s the thing I need to explain about walkers: Walking is hard with or without a walker (thanks to FA.) Always. Using a walker adds stability and some control, which helps prevent falls when I walk.

What makes me excited about this device is the...

July 26, 2019

Today was a big day. I ordered a new assistive device. It’s called a Rollz Motion (Rollz International ) ♿️

It’s a rollator (walker) & wheelchair in ONE! I can use it as a walker and then when my fatigue gets the better of me or I’m just having a bad FA day, I can...

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